Things I Love
Disjointed
Editor: Diana Jovin, with contributions from Paldeep Atwal, Myles Koby, Petra Klinge, Anne Maitland, and others
A multidisciplinary manual with practical advice, patient experiences, and expert chapters on hEDS/HSD diagnosis and care.
Why read: For validated, comprehensive advice and multiple medical perspectives.
The Trifecta Passport
Author: Amber Walker
Integrative guide for patients with MCAS, POTS, and EDS on lifestyle, symptom tracking, and holistic management.
Why read: For holistic strategies and concrete tools to manage challenging comorbidities.
Ehlers-Danlos & Related Conditions
Living Life to the Fullest With Ehlers-Danlos Syndrome
Authors: Kevin Muldowney, PT & Kathleen Muldowney, PT
Step-by-step PT strategies and daily function tips for people with EDS.
Why read: For safe, EDS-specific rehab routines and mobility guidance.
Symptomatic
Authors: Clair Francomano, Alan J. Hakim, Lansdale G.S. Henderson, Fraser C. Henderson
Symptom-based handbook with clear explanations and management recommendations for EDS/HSD presentations.
Why read: For structured help understanding and managing complex symptoms.
Taming The Zebra
Authors: Patricia Stott & Heather Purdin
A guide to PT and system-based care, with tailored adaptations for EDS/HSD.
Why read: For in-depth, therapist-driven practical solutions for body-wide EDS effects.