Books & Podcasts
Discover curated books and podcasts on chronic illness, resilience, and medical science. These are hand-picked for curious, science-minded readers.
Some of the links on this page are affiliate links. That means I may earn a small commission if you choose to purchase through them, at no additional cost to you.
Every book here is one I’ve personally read, researched, or believe can help deepen your understanding of science, resilience, and chronic illness.
Disjointed
Editor: Diana Jovin, with contributions from Paldeep Atwal, Myles Koby, Petra Klinge, Anne Maitland, and others
A multidisciplinary manual with practical advice, patient experiences, and expert chapters on hEDS/HSD diagnosis and care.
Why read: For validated, comprehensive advice and multiple medical perspectives.
The Trifecta Passport
Author: Amber Walker
Integrative guide for patients with MCAS, POTS, and EDS on lifestyle, symptom tracking, and holistic management.
Why read: For holistic strategies and concrete tools to manage challenging comorbidities.
Ehlers-Danlos & Related Conditions
Living Life to the Fullest With Ehlers-Danlos Syndrome
Authors: Kevin Muldowney, PT & Kathleen Muldowney, PT
Step-by-step PT strategies and daily function tips for people with EDS.
Why read: For safe, EDS-specific rehab routines and mobility guidance.
Symptomatic
Authors: Clair Francomano, Alan J. Hakim, Lansdale G.S. Henderson, Fraser C. Henderson
Symptom-based handbook with clear explanations and management recommendations for EDS/HSD presentations.
Why read: For structured help understanding and managing complex symptoms.
Taming The Zebra
Authors: Patricia Stott & Heather Purdin
A guide to PT and system-based care, with tailored adaptations for EDS/HSD.
Why read: For in-depth, therapist-driven practical solutions for body-wide EDS effects.